Liam Dennis

Liam was 4 years old when he was diagnosed with SIOD. Liam was an open-minded, fun-loving boy who was always ready to have fun .... he loved Rammstein and Playmobil.

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Liam passed away in January of 2023.

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What were your thoughts when you FIRST learned that your child was diagnosed with SIOD?

I was shocked and didn't know what to expect.

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Tell us briefly about the medical complications that have occurred because of SIOD

Severe headaches, neurological deficits, hip surgeries, strokes, epilepsy

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What has your child's treatment plan looked like?

Many, many appointments and many medicines.

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What challenges does your family face because of SIOD?

The challenge is that you have to stay positive despite this illness.

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What would a cure mean to you and your child?

I would give anything if it could heal my child.

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