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We are in this TOGETHER!

As part of the SIOD family, we hope to provide you with resources and support through your journey.


Everyone deals with this diagnosis and its impact on their family differently. Whatever your process is, please know that you are not alone. 

We have compiled this Next Steps guide to help walk you through what to expect with an SIOD diagnosis for your child. This document can be downloaded and printed off to give to physicians or anyone who helps to care for your child.

Group therapy

Facebook support group

This group is for families of those affected by SIOD. This is a safe place to ask questions and voice your concerns! We are all in this together to save our children's lives! 

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