Our Superheroes.

“A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” - Christopher Reeve

All of these children have been diagnosed with SIOD.  Some of them unfortunately aren't with us anymore. You can read all of their stories at the links below.

If you have a child with SIOD and would like to be added to this page, please complete this form. 

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Kruz Davenport

Muscle Shoals, AL

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Madison Floto

Utah

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Milo 

Germany

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Rochon Brune

Paris, France

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Leart Dervishaj

Little Ferry, NJ

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Paizlee Davenport

Muscle Shoals, AL

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Emily Betten

New Jersey

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Aleksandra Tarchokova

Russia

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Marley Caratti

Australia

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Angela Meng

Beijing, China

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Connor Tinnin

Grand Blanc, Michigan

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Boris Trojanovic

Paris, France

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Emily Koesters

Gretna, Nebraska

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Arlo Caratti

Australia

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Jace Williams

Nebraska