Our Superheroes.

“A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles.” - Christopher Reeve

All of these children have been diagnosed with SIOD. Some of them unfortunately aren't with us anymore. You can read all of their stories at the links below.

If you have a child with SIOD and would like to be added to this page, please complete this form.

I'd like to include my child's SIOD story

Kruz Davenport

Muscle Shoals, AL

Madison Floto

Utah

Milo

Germany

Rochon Brune

Paris, France

Leart Dervishaj

Little Ferry, NJ

Paizlee Davenport

Muscle Shoals, AL

Emily Betten

New Jersey

Aleksandra Tarchokova

Russia

Marley Caratti

Australia

Angela Meng

Beijing, China

Connor Tinnin

Grand Blanc, Michigan

Boris Trojanovic

Paris, France

Emily Koesters

Gretna, Nebraska

Arlo Caratti

Australia

Jace Williams

Nebraska